Post 172  

EDS 

Ehlers-Danlos Syndrome

Ehlers-Danlos syndrome (EDS) is a group of inherited connective tissue disorders, caused by various defects in the synthesis of collagen. EDS is known to affect men and women of all racial and ethnic backgrounds. There are six distinct types of EDS currently identified.

EDS is an inherited condition for which there is no cure. It is a connective tissue failure which results in many side effects such as painful bones and joints, hyperelasticity, skin sagginess, and more.

There are supplements which are helpful because to help combat many deficiencies related to this illness. Be sure to eat an anti-inflammatory diet and include herbs. Try to eat foods high in magnesium and Google all supplements for their food sources and include these in your diet. Foods naturally contain the compounds which make the essential nutrient work most efficiently and effectively.

For pain, the best considerations are either medical marijuana and/or kratom.  For inflammation, take Anti-Inflammatory Powder daily.  This has recently been renamed Golden Milk. You can find this under Supplement Powders. Golden Milk should be consumed one or two times a day in seed milk or a smoothie.

As for kratom, I would suggest the Red strains. Kratom won’t slow down the brain like marijuana. As for medical marijuana, here are the recommended types for this condition; For children, often the most important form will be CBD’s because they have no psychoactive qualities. But I would consult a good doctor who knows the benefits of medical marijuana and then purchase from a reputable professional. I can direct you on this as well.

Best Marijuana Strains For EDS: Sensi-Star, Snow White (migraines), Romulan, White Widow, Mango x Durban, AK-47, Bluberry (arthritis), White Russian, M39, Slow Train, Trainwreck, Legends Ultimate Indica, UBC Chemo x Grapefruit, Super Silver Haze, Sour Diesel, Concentrates better for this disease (syndrome).

Best Cannabis Strains overall for condition: Sativa x Indica or Indica x Sativa

Supplements that bear some relief;

These are adult doses below. When giving supplements to children, the amount is generally reduced by about one-half that of an adult. Consult your pediatrician for specific guidance for children.

Hydrolyzed Collagen Peptides (powder)– 10 grams per day, taken any time of the day.  If gut issues are primary, take this before bed.
Full Spectrum Digestive Enzyme with meals– 1 pill 10 minutes before each meal
Fish Oil- 1000 mg (sardine, anchovy, mackerel based)– 1 pill 1-3 times daily with meals
Probiotics– 2 pills with bedtime- (I have one I like called 16 Strain- it works and doesn’t need refrigeration, most do, but not this one). If the intestinal tract is compromised, take 1 probiotic also with each meal
Glucosamine 1500 mg– taken 1 or two times per day with food
CoQ10 200 mg.–  once per day with a meal
Anti-Inflammatory Powder (Golden Milk)- 1 rounded teaspoon 1-2 times daily blended into HOT seed milk, such unsweetened coconut milk, almond, or hemp seed milk. Add stevia or a little raw unfiltered honey if you want sweetener
Carnitine– 250 mg– on an empty stomach
Linolenic Acid– 240 mg– with a meal
Whole Leaf Organic Aloe Vera Juice– (1/2 oz upon rising, in water)– if you get diarrhea from this, stop and try a lower dose
Calcium Citrate 500 mg, Magnesium 200 mg.– taken before bed, this supplement can help with rest
Vitamin K 35 mg.– take on an empty stomach
Vitamin D3– 5000 mg.– with a meal
Ginkgo– 1 to 4 pills daily (this is also a blood thinner)–  1-2 pills, 1-2 times per day, on an empty stomach
White Willow Bark– natural aspirin, 1 pill as needed with water without food
Baking Soda– use 1/2 teaspoon and 1/2 teaspoon of raw unfiltered honey in warm water. Drink this 1-2 times daily (child’s portion size) to keep the body more alkaline and lower in inflammation– take on an empty stomach at least 1 hour away from food
Good oils for cooking; olive oil, hemp seed oil, coconut oil
Best Proteins; hemp
Flax Seed Meal and Oil– oil 1 tsp daily and/or 2 tbl seeds in a smoothie
Chia– this is a seed that contains omega 3 fatty acids, soak prior to consuming, add to tea, water, juice, or soak and add to smoothies– 1-2 tablespoons daily

Also here is a link to a nice YouTube video that might help you expand your knowledge base and try natural things. The young woman is experienced with this genetic illness and I think it helps to hear it from someone who has it. I will post this material on the website. If something new is found, I will update this post, so do check back. Blessings to you. Here is the link to the video–  You may have to copy and paste this to your browser-

https://www.pinterest.com/pin/548735535821100263/